Published 16 October 2019 Concordance Between Survey and Registry Data on Medication Use Among Self- and Proxy-Respondents in the Longitudinal Study of Aging Danish Twins and the Danish 1905-Cohort Study Read the full paper here.

https://www.lupop.lu.se/article/who-you-ask-important - 2025-02-22

Published 17 October 2019 Design of a patient registry to inform real-world treatments, outcomes, and quality of life Read the full paper here.

https://www.lupop.lu.se/article/prostate-cancer-asia - 2025-02-22

Published 18 October 2019 Routine patient-reported outcome measure (PROM) collection often disrupts clinical workflow and can place a burden on both the patient and the provider. Electronic PROM collection systems, if implemented deliberately to maximize convenience and efficiency, have the potential to mitigate these obstacles. Read the full paper here.

https://www.lupop.lu.se/article/using-web-based-data-collection-platform-implement-effective-electronic-patient-reported-outcome - 2025-02-22

Published 19 October 2019 A proposal for improved protection of personal information in registry-based clinical research Read more here.

https://www.lupop.lu.se/article/de-identified-linkage-data-across-separate-registers - 2025-02-22

Published 20 October 2019 The objective of the registry is to improve the health out-comes of the tens of thousands of women who undergo pelvic floor reconstructive procedures each year. Read the full paper here.

https://www.lupop.lu.se/article/australasian-pelvic-floor-procedure-registry-not-time - 2025-02-22

Published 7 October 2019 The current study supports centralisation of RC for bladder cancer, but also underpins the need for monitoring treatment delays associated with referral New publication in BJU International.Read more here

https://www.lupop.lu.se/article/period-specific-mean-annual-hospital-volume-radical-cystectomy-associated-outcome-and-perioperative - 2025-02-22

Published 8 October 2019 Clinical research is the study of aspects of patient health or illness that are closely related to clinical practice. In the late 20th and early 21th century, outcomes for patients with rheumatoid arthritis (RA) improved dramatically due to breakthroughs in new drugs. Patient-reported outcome measures now play a significant role in the drug development process as study end

https://www.lupop.lu.se/article/paradigm-shift-studies-based-rheumatoid-arthritis-clinical-registries - 2025-02-22

Published 9 October 2019 The least biased censoring strategy for time-to-event analyses in the presence of LTFU depends on the event and estimand of interest. New publication in Epidemiology.Read more here.

https://www.lupop.lu.se/article/censoring-loss-follow-time-event-analyses-composite-outcomes-or-presence-competing-risks - 2025-02-22

Published 10 October 2019 Pitfalls were identified in 2 major areas—design and data analysis. Design pitfalls included unbalanced cohorts, uncontrolled covariates, and flawed oncologic variables. Analytical pitfalls included incorrect application of univariate analyses, inclusion of inaccurate data, and inclusion of stage IVc disease in curative survival analysis. Additional limitations of databas

https://www.lupop.lu.se/article/common-pitfalls-head-and-neck-research-using-cancer-registries - 2025-02-22

Published 11 October 2019 Carriers of haemophilia suffer a significant risk for joint comorbidities. This risk seems to correlate to the factor activity. Our findings underline the impor‐tance of regular clinical follow‐up of carriers at HTCs. New publication in Wiley.Read more here.

https://www.lupop.lu.se/article/joint-comorbidities-among-swedish-carriers-haemophilia-register-based-cohort-study-over-22-years - 2025-02-22

Published 21 October 2019 Enzalutamide can be used to effectively treat mCRPC patients in daily clinical settings, despite the patients being older and less healthy than those enrolled in the previous randomised, clinical registration studies. Read the full paper here.

https://www.lupop.lu.se/article/registry-based-study-evaluating-overall-survival-and-treatment-duration-swedish-patients-metastatic - 2025-02-22

Published 22 October 2019 Incidence, patient characteristics and risk of revision Read the full paper here.

https://www.lupop.lu.se/article/manipulation-under-anesthesia-after-primary-knee-arthroplasty-sweden - 2025-02-22

Published 23 October 2019 Results from a Swedish community-based cohort study Read the full paper here.

https://www.lupop.lu.se/article/use-anthropometric-measures-prediction-incident-gout - 2025-02-22

Published 24 October 2019 A cohort study from Ronneby, Sweden Read the full paper here.

https://www.lupop.lu.se/article/high-exposure-perfluorinated-compounds-drinking-water-and-thyroid-disease - 2025-02-22

Published 25 October 2019 The current study supports the usage of gene expression signatures in specific clinical treatment groups within population-based breast cancer. It also stresses the need of further development to reach higher consensus in individual patient classifications, especially for intermediate-risk patients, and the targeting of patients where current gene signatures and prognosti

https://www.lupop.lu.se/article/cross-comparison-and-prognostic-assessment-breast-cancer-multigene-signatures-large-population-based - 2025-02-22

Published 26 October 2019 This article describes how central cancer registries can provide a population-based sample frame that will lead to studies with strong external validity, how central cancer registries can link with public and private health insurance claims to obtain complete treatment information, how central cancer registries can use informatics techniques to provide population-based ra

https://www.lupop.lu.se/article/unlocking-potential-population-based-cancer-registries - 2025-02-22

Published 27 October 2019 Report on a nationwide, population‐based register with transparent reporting of data on the performance of radical prostatectomy. These data are needed as a basis for quality assurance with comparisons of results from individual surgeons and hospitals. Read the full paper here.

https://www.lupop.lu.se/article/population-based-nationwide-registration-ofprostatectomies-sweden - 2025-02-22

Published 28 October 2019 This study showed a high adherence with treatment with statins among colorectal cancer patients. Read the full paper here.

https://www.lupop.lu.se/article/validating-registry-data-statins-prescriptions-bloodmeasurements - 2025-02-22

Published 29 October 2019 The Pregnancy Register offers huge research potential because of its large size, high completeness, and availability. Further validation work is underway to enhance this data resource and identify optimal approaches for its use. Read the full paper here.

https://www.lupop.lu.se/article/methods-generate-and-validate-pregnancy-register-theuk-clinical-practice-research-datalink-primary - 2025-02-22

Published 30 October 2019 Noninterventionist prospective multicentre international Registry pro‐moted by the European Helicobacter and Microbiota Study Group. National Coordinators will select recruiting gastroenterologists in their country that will register the H pylori‐related routine clinical practice consultations they receive in an electronic case report form (e‐CRF) provided by AEG‐REDCa Re

https://www.lupop.lu.se/article/protocol-european-registry-management-helicobacter-pylori-infection-hp-eureg - 2025-02-22